POS1472-HPR Clinicians’ perspectives on psychological distress and meeting patients’ support needs in rheumatology care settings


Type:Poster published in journal
Year:2021
Title:POS1472-HPR Clinicians’ perspectives on psychological distress and meeting patients’ support needs in rheumatology care settings
Author(s):Christine Silverthorne, Jo Daniels, Miles Thompson, Joanna Robson, Mwidimi Ndosi, Caroline Swales, Kate Wilkins, Emma Dures
Outlet:Annals of the Rheumatic Diseases
Abstract Summary:Background: People with inflammatory rheumatic diseases (IRDs) face challenges that include fluctuations in pain, fatigue and flares of disease activity, complex medical regimens, and decisions about when to seek clinical help with symptoms [1,2]. Evidence suggests levels of anxiety and depression are higher in people with IRDs compared to the general population [3]. Rheumatology teams report that psychologically distressed patients can have additional support needs and require more time. Patients’ concerns include health-related anxiety and difficulty accepting the diagnosis. This group can have poor outcomes and poor adherence to treatments. However, little is currently known about optimal ways to meet these patients’ support needs.
Objectives: To understand rheumatology clinicians’ perspectives on psychological distress in care settings with the long-term aim to develop a proposed model/pathway of support.

Methods: Telephone interviews were conducted with members of UK rheumatology teams who have clinical experience with patients experiencing distress. The semi-structured interviews explored both ‘what happens now’ (current clinical practice) and ‘what should happen’ (acceptable models of future psychological support provision). The semi-structured format provided flexibility to probe more deeply and develop new lines of enquiry based on participants’ responses.

Results: Fourteen interviews were conducted with rheumatology clinicians including 2 consultants, 4 nurses, 1 physiotherapist, 4 occupational therapists, 2 clinical psychologists and 1 podiatrist. Inductive thematic analysis was used to analyse the data. Two main themes represent the data.

Conclusion: Distress can be obvious or hidden and cause issues for both patient and clinician. It can lead to poor engagement with care provision. Clinicians differ in their perceptions of distress and in their thresholds for dealing with distress and have described the inconsistency of support offered for distressed patients. They described the powerful link between physical and mental distress, the vicious cycle that can develop, and the benefits of incorporating a psychological approach to treatment. This study suggests psychological support should be embedded within the team as it is felt there is a need for speciality understanding and for patients’ emotional wellbeing to consistently be given equal priority to their physical wellbeing.
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Reference:Silverthorne, C., Daniels, J., Thompson, M., Robson, J., Ndosi, M., Swales, C., …Dures, E. (2021). POS1472-HPR Clinicians’ perspectives on psychological distress and meeting patients’ support needs in rheumatology care settings. Annals of the Rheumatic Diseases, 80(S1), 1021
https://doi.org/10.1136/annrheumdis-2021-eular.2429
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